MetroHealth is home to the only MDA Clinic in Cleveland
People know the Muscular Dystrophy Association (MDA) because they watch Jerry Lewis raise money for it on his Annual Labor Day Weekend Telethon.
The MDA uses the money to pay for medical care for people who have muscular dystrophy,amyotrophic lateral sclerosis (ALS), and many other diseases. In Northeast Ohio, the MDA provides its services through the MetroHealth MDA Clinic.
The MetroHealth MDA Clinic provides people with many other diseases the same services as those with muscular dystrophy and ALS, also at no charge to them or their families. These diseases include
- myasthenia gravis
- Kearn-Sayre syndrome and other mitochondrial myopathies
- McArdle's disease
- acid maltase deficiency and other metabolic myopathies
- dermatomyositis and inclusion-body myositis
- Kennedy's disease and other spinal muscular atrophies
- Friedreich's and other hereditary ataxias
- Charcot-Marie-Tooth disease and other inherited neuropathies
- central-core disease and other congenital myopathies
- myotonia congenita
- periodic paralysis
Adult patients with muscular dystrophy, ALS, and other diseases are seen at MetroHealth by Marc D. Winkelman, MD. To schedule an appointment for an adult patient age 18 and older, please call 216-778-3958.
Child patients are seen by a physician team member of the Pediatric Neurology Department. To schedule an appointment for a pediatric patient under the age of 18, please call 216-778-2222. When you speak to the scheduler, please ask for the Muscular Dystrophy/ALS Clinic.
What is Muscular Dystrophy?
Muscular dystrophy is a hereditary disease, and there are more than 10 major forms, including Duchenne, Becker, limb-girdle, facioscapulohumeral, and myotonic. Some begin in childhood and some in adult years. All cause weakness of the limbs that worsens with time, and some types lead to facial weakness, inability to swallow, shortness of breath, and heart failure. Although muscular dystrophy is not curable, all patients need supportive treatment, including medical care by physicians and genetic counseling. Many need physical therapy, leg braces, wheelchairs, and help in obtaining social services. The MetroHealth/MDA Cinic provides these services and many others, as well as equipment at no charge to patients or their families.
What is ALS/Lou Gehrig's Disease?
Amyotrophic lateral sclerosis (ALS, commonly known as Lou Gehrig's disease) is a disease that causes muscle weakness in adults. Like muscular dystrophy, it affects the limbs, swallowing, and breathing. It worsens over a few years' time and eventually leads to death. Although ALS is not curable, all patients need regular medical care by physicians in several medical specialties, braces for weak limbs, and eventually a wheelchair. The MetroHealth MDA Clinic provides these services and many others at no charge to patients or their families.